"Sickle cell does not belong in the closet!"
One of the greatest Ugandans who ever lived was Philly Bongoley Lutaya who in his own words gave Aids “a face". Taking on his philosophy is Ruth Nankanja a sickle cell patient.
Ruth soon realized that people would rather sweep sickle cell under the carpet and forget about it... she knew only too well the stigma and discrimination faced by people with sickle cell in Uganda.
Yet once armed with scientific fact as to the cause of sickle cell disease, Ruth Nankanja committed herself, a number of other patients together with several health workers in order to change this state of affairs.
Our Association is a non-profit organization dedicated to serving the local sickle cell disease community in Uganda.
Our sickle cell disease
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Sickle Cell Association of Uganda is now the only grass roots organisation representing the interests of patients in Uganda. We strive to change the perception that the majority of the population has in Uganda about the disease - that those who have this disease are worthless people in society, worth stigmatising and discriminating against. Through counselling and education we strive to improve the lives of these families.
God centered holistic sickle cell care.
Empower the masses (general public) about sickle cell disease so that the occurrence of the disease, and its complications, can be reduced. This will enable individuals to have a purposeful and meaningful life through understanding the principles of healthy living.
Core Values or guiding principles
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Sickle Cell in Uganda
Join hands to make a difference in these children's lives for the majority of the sufferers are young.
The only Sickle cell Clinic is in MulagoHospital yet Sickle cell disease is widely spread throughout the whole country. Awareness is still low because the Sickle cell Association of Uganda, which is carrying out this activity, has limited funding and only manages to reach out to few communities. However, Sickle cell is a forgotten enemy which desperately needs to be addressed.
International Alliance of Patients' Organizations
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