"Sickle cell does not belong in the closet!"
One of the greatest Ugandans who ever lived was Philly Bongoley Lutaya who in his own words gave Aids “a face". Taking on his philosophy is Ruth Nankanja a sickle cell patient.
Ruth soon realized that people would rather sweep sickle cell under the carpet and forget about it... she knew only too well the stigma and discrimination faced by people with sickle cell in Uganda.
Yet once armed with scientific facts as to the cause of sickle cell disease, Ruth Nankanja committed herself, a number of other patients together with several health workers in order to change this state of affairs.
Our Association is a non-profit organization dedicated to serving the local sickle cell disease community in Uganda.
Our sickle cell disease
are on call 24/7
contact us here
Sickle Cell Association of Uganda is now one of the grass roots organization representing the interests of patients in Uganda. We strive to change the perception that the majority of the population has in Uganda about the disease - that those who have this disease are worthless people in society, worth stigmatizing and discriminating against. Through counselling and education we strive to improve the lives of these families.
Sickle Cell in Uganda
Join hands to make a difference in these children's lives for the majority of the sufferers are young.
Currently, there are a number of Sickle Cell Clinics in Uganda, unfortunately most of them are located in Kampala and most of our people in the rural areas who are so affected cannot access them due to the current economic situation in the country due to the Covid-19 Pandemic. People in these rural areas need our intervention, please do not give up on them, help wherever you can.
21st SEPTEMBER 2021
is Joint Activity Day with Partner OPDs; UNAC, EFPA, BISOU, TTAU, SIA, BISOU, MADIPHA. As we fight for recognition and inclusion in the disability fraternity.
Theme: "I am here, listen to me, recognize me and Include me. Don't leave me behind."
International Alliance of Patients' Organizations
Please get in touch here to offer comments, join our mailing list, help in any way or to make a donation.
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